25th Anniversary of Ryan White HIV/AIDS Program


Narrator: Twenty-five years ago, the Ryan
White Comprehensive AIDS Resources Emergency Act – the Ryan White CARE Act – came to life
at a time of despair and hope among people on the frontlines of the HIV/AIDS epidemic. The Ryan White HIV/AIDS Program was named
for a courageous young man named Ryan White who was diagnosed at age 13 with AIDS following
a blood transfusion in December 1984. An American teenager living in Indiana, Ryan White was
given six months to live. At the time, the disease was poorly understood. When Ryan White
tried to return to school, he fought AIDS-related discrimination in his community. Along with
his mother, he rallied for his right to attend school – gaining National attention – and
became the face of public education about the disease. Ryan White died in April 1990,
only months before Congress passed the legislation bearing his name. From early on in the HIV/AIDS crisis, the
Health Resources and Services Administration (HRSA), the agency that administers the Program,
has led the public health response in the care and treatment of people living with HIV.
Today HRSA funds hundreds of grantees across the country to provide services to people
living with HIV who do not have sufficient resources to cope with this disease. Yvonne Newberry: I think that Ryan White is instrumental
in putting HIV Care where we are today. I don’t think HIV care would be anywhere near
where it is if it wasn’t for the support of Ryan White. And I know that without question
this program here wouldn’t even resemble what we have now. Greg Townsend: Going back to before we had Ryan White funding,
basically it was a couple of doctors, a couple of nurses, patients. The new drugs came out
in the mid 1990’s and our ability to effectively manage HIV changed dramatically. We have medical
case managers, which we didn’t have before. We have gynecological services on site, which
we didn’t have before, mental health services on site, which we didn’t have before. Yvonne Newberry: Historically, the ability
to provide the family care, the one stop shopping that we’re able to provide with having the
Ryan White funding. Our continuity is much better, people show up much better. I think
it’s definitely made a difference in terms of transmission during breakouts. I don’t
think there is a question about that. Rebecca Dillingham: The UVA program often
transforms people’s lives, I believe, by letting them know that somebody, in fact a whole team
of people really care. Gabrielle Marzani, MD: We have people who just
feel broken because of the diagnosis and we are able to give them a sense of confidence
that, we say, you don’t have to believe it, we’re going to believe it for you until you
start to believe it, and then we all move together. Patient: Without this clinic, I wouldn’t have
access to my medication. I wouldn’t also have access to gynecology services, I wouldn’t
have access to any of that. It has impacted my life a lot because before this, I was originally
diagnosed when I was 14 years old, and I went years and years with no treatment whatsoever,
because for me I tried to run from it for a long time. I didn’t want to deal with it.
But now that I have it has changed my life a lot for the better. Mary Murphy: The patient population is, I
think, quite disadvantaged in this area. There’s often a lot of ignorance about HIV disease,
about how it is transmitted, and I think that’s why it’s so important to have so many other
services available to our patient population to help them stay in care and face this illness. Titania Riley: A lot of people on a fixed
income that are positive, and they’re most likely having trouble paying for medical bills, food,
transportation, mental health, mental health, mental health (laughs). Just knowing you have
a support system, knowing somebody’s there, and you’re not going through it by yourself. Patient: I’m HIV positive, and I don’t have
to go eventually break my neck to try to find help. The help was there when I first
came in. Like I said, I really knew nothing about Ryan White until I moved into the shelter
and it got explained to me and then once I realized that seeing all the services that
benefited because of him it was very beneficial. Brandi Bowen: After Katrina, our entire system
of care was essentially utterly decimated. Imagine an environment where there were virtually
no office space, there were virtually no clinicians, but at the same time as our clients were able
to return or had remained in the New Orleans area, they knew that this was the HIV care
system that they knew that they were comfortable with, that they quickly return to the New
Orleans area seeking that care. Mary Murphy: We were able to regroup shortly
after Katrina and we had sort of roving HIV clinics at various sites around the city where
there was availability of a physical setting to give medical care. Tacy Slater: Here at the University of Nebraska Medical Center
Specialty Care Center, we serve a great number of minorities. We have a very large population
here from Southern Sudan. We also serve a large Hispanic population in addition to our Latino
culture we also serve an Asian population. Patient: Because of Ryan White, I am still
living a healthy life and my boyfriend and I are still together and he is negative. Susan Swindells, MD: What’s underappreciated
is the secondary prevention effect in that people that are treated are much less likely
to infect others and so getting everybody in care and on treatment has a big ripple effect in
terms of the community. Daniel Cobos: The rural population, that’s
a hard group because there’s still a lot of stigma in rural parts of the state. We had
outreach clinics that would go out to rural parts of the state. There are infectious disease
providers out in rural parts but people are afraid to go because they don’t want to be
seen so they will travel here to Omaha and that can be a problem. It’s distance, weather, but we do have funding
through Ryan White to get people here through transportation services so we find a way to
get them here. Patient: For me, it’s been a lifesaver because before that I had nowhere to go. I had no answers, nobody had any kind of hope for you. They’re
all being in one place like this, it’s made it a hundred percent better. Tacy Slater: Now we’re telling people “you
can get on with your life,” you know, get yourself tested, get yourself into care, get yourself on some
medications and we’ll get you moving forward. Narrator: The Ryan White HIV/AIDS Program
plays a critical role in the United State’s public health response to HIV. Working
with cities, states, and local community-based organizations, the Program funds a comprehensive
system of care and treatment for more than half a million people living with HIV each
year.

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Comments

  1. I made the first Quit for Ryan, it was circulated throughout Texas Schools, yellow filled with ballons, each ballon eventually held the nsme of a child with Aids…It became part of the original portion of the aids quilt, which has now been seen throughout the eorkd by over 15 million people… each quilt piece is the size of a standard coffin.

  2. 😒So So Sad 😭 Prayers&Lol To All Ryan’s Family(R.I.P.)Ryan(I Saw The Movie πŸŽ₯ Made With You Playing The Part In Hospital&Cried Throughout Most Of It)You Were So COURAGEOUS&BRAVE(I Wish They Would Aire Yr Life’s Movie That Was Made)I Actually Have A VCR Tape Recorded Of The Ryan WhiteStory I Kept But No Way To View It Anymore~What A True Inspiration You WereπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌ

  3. πŸ’•For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.

    John 3:16
    πŸ’•β€οΈπŸ’•πŸ’•β€οΈπŸ’•β€οΈπŸ’•β€οΈπŸ’•β€οΈπŸ’•β€οΈπŸ’•β€οΈπŸ’•

  4. A Forevermore Dunce, An Admonishment of the Ryan White Care Act Hate Embedded Conspiracy of Social Service and Treatment Provider Care
    https://www.youtube.com/watch?v=FhAv3Qp0Fi8&t=00s

    Proof Of This Conspiracy is corroborated by researching the region to region Glassdoor Reviews for these agencies….. taking one for instance:

    https://www.glassdoor.com/Reviews/Employee-Review-ACCESS-AIDS-Care-RVW11607987.htm

    Aug 18, 2016
    Helpful (2)
    ACCESS AIDS Care Logo
    "…..and another one bites the dust."
    Current Employee – Anonymous Employee in Norfolk, VA
    Doesn't Recommend
    Negative Outlook
    Disapproves of CEO
    I have been working at ACCESS AIDS Care full-time

    Pros

    None come to mind at the moment and I am really trying to come up with one or two.

    Cons

    -Executive Director angry and VERY retaliatory. -Mismanagement of grant funds. AGAIN. -Executive Director still there even after extortion case. -Very unorganized . -Favoritism if your in the click. If not oh well. -Treats employees and clients like they are nothing. -Low pay for an extreme amount of committment. -ZERO ROOM FOR ADVANCEMENT. -If I could leave zero stars i would.. -I'm sure you get the picture.

    Advice to Management

    Restructure the entire organization starting at the top and working down. Why the Board does not see where the problem lies is beyond me which makes me look at the Board as well.

    —–

    This problem is systemtic region to region and a collective research directory of Glassdoor report findings is available here:

    http://webdomains.realuphuman.net/glassdoor.com/HIV-AIDS-SERVICES-ORGANIZATIONS-EmployeeReviews/

    More Info:

    http://aforevermoredunce.fuckeduphuman.net : Full Text and Individually Named Organizations and Persons Being Called Out On These Wrongdoings

    http://barackobama.fuckeduphuman.net : A 911 SOS Urgent Public Web Presence Address To Barack Obama

    http://ryan-white-care-act.fuckeduphuman.net

    See What Happens When I attempted To Bring These Matters Forward Within Doctor Provider Discussion, TERMINATED SERVICES:

    http://doctor-eric-tomomi-shigeno.fuckeduphuman.net/vitals.com-reviews/

    Questions/Comments About This Directed To James Martin Driskill [ [email protected] ]

    http://ryan-white-care-act.fuckeduphuman.net

    Thank you.

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